___

1Acute leukemia

2Adrenal cancer – with distant metastases or inoperable, unresectable or recurrent

3Adult non-Hodgkin lymphoma

4Adult-onset Huntington disease

5Aicardi-Goutieres syndrome

6Alexander disease (ALX) – neonatal and infantile

7Allan-Herndon-Dudley syndrome

8Alobar holoprosencephaly

9Alpers disease

10Alpha mannosidosis – type II and III

11Alstrom syndrome

12Alveolar soft part sarcoma

13Amegakaryocytic thrombocytopenia

14Amyotrophic lateral sclerosis (ALS)

15Anaplastic adrenal cancer – with distant metastases or inoperable, unresectable or recurrent

16Angelman syndrome

17Aortic atresia

18Aplastic anemia

19Astrocytoma – grade III and IV

20Ataxia telangiectasia

21Batten disease

22Beta thalassemia major

23Bilateral optic atrophy – infantile

24Bilateral tetinoblastoma

25Bladder cancer – with distant metastases or inoperable or unresectable

26Breast cancer – with distant metastases or inoperable or unresectable

27Canavan disease (CD)

28Carcinoma of unknown primary site

29Caudal regression syndrome – types III and IV

30Cerebro oculo facio skeletal (COFS) Syndrome

31Cerebrotendinous xanthomatosis

32Child neuroblastoma – with distant metastases or recurrent

33Child non-Hodgkin lymphoma – recurrent

34Child T-cell lymphoblastic lymphoma

35Chondrosarcoma – with multimodal therapy

36Chronic myelogenous leukemia (CML) – blast phase

37Congenital lymphedema

38Cornelia de Lange syndrome – classic Form

39Corticobasal degeneration

40Creutzfeldt-Jakob disease (CJD) – adult

41Cri du chat syndrome

42Degos disease, systemic

43DeSanctis cacchione syndrome

44Dravet syndrome

45Early-onset Alzheimer’s disease

46Edwards syndrome (Trisomy 18)

47Eisenmenger syndrome

48Endometrial stromal sarcoma

49Endomyocardial fibrosis

50Ependymoblastoma (child brain tumor)

51Erdheim Chester disease

52Esophageal cancer

53Ewing sarcoma

54Farber’s disease (FD) – infantile

55Fatal familial insomnia

56Fibrodysplasia ossificans progressiva

57Follicular dendritic cell sarcoma – metastatic or recurrent

58Friedreichs ataxia (FRDA)

59Frontotemporal dementia (FTD), Picks disease – type A – Adult

60Fryns syndrome

61Fucosidosis – type 1

62Fukuyama congenital muscular dystrophy

63Fulminant giant cell myocarditis

64Galactosialidosis – early and late infantile types

65Gallbladder cancer

66Gaucher disease (GD) – type 2

67Glioblastoma multiforme (adult brain tumor)

68Glioma grade III and IV

69Glutaric acidemia – type II

70Head and neck Cancers – with distant metastasis or inoperable or unresectable

71Heart transplant graft failure

72Heart transplant wait list, 1a/1b

73Hemophagocytic lymphohistiocytosis (HLH), familial type

74Hepatoblastoma

75Hepatopulmonary syndrome

76Hepatorenal syndrome

77Histiocytosis syndromes

78Hutchinson-Gilford progeria syndrome

79Hydranencephaly

80Hypocomplementemic urticarial vasculitis syndrome

81Hypophosphatasia perinatal (lethal) and infantile onset types

82Hypoplastic left heart syndrome

83I cell disease

84Idiopathic pulmonary fibrosis

85Infantile free sialic acid storage disease

86Infantile neuroaxonal dystrophy (INAD)

87Infantile neuronal ceroid lipofuscinoses

88Inflammatory breast cancer (IBC)

89Jervell and Lange-Nielsen syndrome

90Junctional epidermolysis bullosa, lethal type

91Juvenile-onset Huntington disease

92Kidney Cancer – inoperable or unresectable

93Krabbe disease (KD) – infantile

94Kufs disease type A and B

95Large intestine cancer – with distant metastasis or inoperable, unresectable or recurrent

96Late infantile neuronal ceroid lipofuscinoses

97Left ventricular assist device (LVAD) recipient

98Leigh’s disease

99Leiomyosarcoma

100Lesch-Nyhan syndrome (LNS)

101Lewy body dementia

102Lissencephaly

103Liver cancer

104Lowe syndrome

105Lymphomatoid Granulomatosis – grade III

106Malignant brain stem gliomas – childhood

107Malignant gastrointestinal stromal tumor

108Malignant germ cell tumor

109Malignant melanoma – with metastases

110Malignant multiple sclerosis

111Mantle cell lymphoma (MCL)

112Maple syrup urine disease

113Mastocytosis type IV

114MECP 2 duplication syndrome

115Medulloblastoma – with metastases

116Menkes disease – classic or infantile-onset form

117Merkel cell carcinoma – with metastases

118Merosin deficient congenital muscular dystrophy

119Metachromatic leukodystrophy (MLD) – late infantile

120Mitral valve atresia

121Mixed dementias

122MPS I, formerly known as Hurler syndrome

123MPS II, formerly known as Hunter syndrome

124MPS III, formerly known as Sanfilippo syndrome

125Mucosal malignant melanoma

126Multicentric Castleman disease

127Multiple system atrophy

128Myoclonic epilepsy with ragged red fibers syndrome

129Neonatal adrenoleukodystrophy

130Nephrogenic systemic fibrosis

131Neurodegeneration with brain iron accumulation – type 1 and type 2

132NFU-1 mitochondrial disease

133Niemann-Pick disease (NPD) – type A

134Niemann-Pick disease -type C

135Non-ketotic hyperglcinemia

136Non-small cell lung cancer – with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent

137Obliterative bronchiolitis

138Ohtahara syndrome

139Ornithine transcarbamylase (OTC) deficiency

140Orthochromatic leukodystrophy with pigmented glia

141Osteogenesis imperfecta (OI) – type II

142Osteosarcoma, formerly known as bone cancer – with distant metastases or inoperable or unresectable

143Ovarian cancer – with distant metastases or inoperable or unresectable

144Pancreatic cancer

145Paraneoplastic pemphigus

146Patau suyndrome (Trisomy 13)

147Pearson syndrome

148Pelizaeus-Merzbacher disease – classic form

149Pelizaeus-Merzbacher disease – connatal form

150Peripheral nerve cancer – metastatic or recurrent

151Peritoneal mesothelioma

152Peritoneal mucinous carcinomatosis

153Perry syndrome

154Phelan-McDermid syndrome

155Pleural mesothelioma

156Pompe disease – infantile

157Primary cardiac amyloidosis

158Primary central nervous system lymphoma

159Primary effusion lymphoma

160Primary progressive aphasia

161Progressive multifocal leukoencephalopathy

162Progressive supranuclear palsy

163Pulmonary atresia

164Pulmonary kaposi sarcoma

165Retinopathy of prematurity – stage V

166Rett (RTT) syndrome

167Rhabdomyosarcoma

168Rhizomelic chondrodysplasia punctata

169Roberts syndrome

170Salivary tumors

171Sandhoff disease

172Schindler disease – type 1

173Severe combined immunodeficiency – childhood

174Single ventricle

175Sinonasal cancer

176Small cell cancer (of the large intestine, ovary, prostate or uterus)

177Small cell lung cancer

178Small intestine cancer – with distant metastases or inoperable, unresectable or recurrent

179Smith Lemli Opitz syndrome

180Spinal muscular atrophy (SMA) – types 0 And 1

181Spinal nerve root cancer – metastatic or recurrent

182Spinocerebellar ataxia

183Stiff person syndrome

184Stomach cancer – with distant metastases or inoperable, unresectable or recurrent

185Subacute sclerosing panencephalitis

186Tabes dorsalis

187Tay Sachs disease – infantile type

188Thanatophoric dysplasia, type 1

189The ALS/Parkinsonism dementia complex

190Thyroid cancer

191Transplant coronary artery vasculopathy

192Tricuspid atresia

193Ullrich congenital muscular dystrophy

194Ureter cancer – with distant metastases or inoperable, unresectable or recurrent

195Usher syndrome – type I

196Walker Warburg syndrome

197Wolf-Hirschhorn syndrome

198Wolman disease

199Xeroderma pigmentosum

200Zellweger syndrome

___

Source: Social Security Administration

___

Online: http://www.socialsecurity.gov/compassionateallowances/